• 18Jul

    During Baby C’s 3-week stay in the hospital recently, she had gone through many types of scans from countless x-rays to a Fluoroscopy, ultrasound scans, a CT Scan and even an Echo Heart Scan!  That explains how our bill amounted to over RM50k!   During that period of time, I cannot tell you how terribly worried I was of the amount of radiation my little baby’s body was exposed to everyday.  But it’s between the devil and the deep blue sea.   X-ray or you won’t know what’s going on inside her abdomen and guts.  It’s a case of do or die.  During the fluoroscopy procedure, my heart pounded each time I saw the Radiologist taking pictures of Baby’s abdomen… all in, there were easily 20-30 pictures!  That procedure only completed about 4 hours later.   Not to mention the 3 days straight in a row of x-rays taken (including one done on one night towards midnight) to rule out obstruction of the guts when she puked non-stop.   Anyway, sigh…. all is over now, I hope.

    During the 3-week nightmarish hospital stay, when all the x-rays and scans did not give a conclusive and definite answer, a group of paeds came to see Baby.  The chief paed did not want to leave any stones unturned and sent her for an Echo Heart Scan to rule out Kawasaki…. though she did not have other Kawasaki symptoms. The cardiologist from another hospital was called to perform the Echo Heart Scan on Baby. The scan showed a slight dilation of the heart vessel but that did not warrant any serious attention. The report showed that all was normal but to monitor Baby’s condition.

    Days later after all those scans and x-rays, when Baby’s belly ballooned up like an inflated balloon, our surgeon ordered Baby to be operated on immediately and I was given a notice of like less than an hour to be mentally prepared!  That day – 22 May 2009 will forever be etched in my memory.  Not a day goes by without me reminiscing of what Baby and I had gone through during her 3-week nightmarish stay in the hospital. It was like living hell for Baby and I pray that Baby never ever have to re-live those days again, ever.

  • 03Jun

    During her 3-week stay in the hospital, Baby C was given two 50ml syringes of albumin via IV drips to nourish her weakened body, as shown in the pic below:

    Each 50ml syringe cost a whopping RM300 ++.   Can you imagine how many eggs we can buy with over RM700++? But it’s ok, as long as it’s good for our sweetie-pie, we will pay for it.

  • 26May

    After not having eaten any solids and having persistent vomiting for almost 3 weeks, Baby C was finally given Total Parenteral Nutritional (TPN) drips on Saturday last week, i.e. a day after her second surgery. Baby C had her first major surgery which was a ureteral reimplantation surgery on 5 May 09 and on 22 May 09, she had another major surgery, this time to fix her guts, a complication that arose from the first surgery.

    The Kabiven TPN drips goes into the central venous catheter on her body, i.e. near her chest – above her right breast. The central venous catheter was inserted during Baby’s second surgery last Friday. Sutures were used to hold the catheter in place. The sutures will disintegrate by itself. Baby will have to be sedated when our surgeon removes the catheter before she is discharged from the hospital.

    This central catheter and the bunch of tubes that are attached to it are driving me bonkers. They get intertwined whenever Baby moves about and especially when she sleeps (coz she moves about a lot in her sleep) and I have to lift her up all the time to detangle the tubes and to ensure that she’s not sleeping on the tubes… which always made Baby scream as she hates being disrupted from her sleep.

    This bag of TPN which looks very much like milk costs a few hundred ringgit.  It consists of water, amino acids, minerals like calcium, iodin, magnesium, potassium, etc, a wide range of vitamins, purified soy bean oil, purified egg phospholipids and much more. I read that a person can survive up to 35 years just depending on TPN.

    After a day on the TPN drips, the color on Baby C’s face turned pinkish and her lips turned red again. She also regained some energy and zeal and was almost back to her usual self again after being on the TPN drips for 2 days.

    Here, the nurse (in white uniform) and Sister (in blue uniform)  are preparing the second bag of Kabiven TPN for Baby C.   That was yesterday morning.

    Because the central venous catheter needs to remain in place for quite some time and cannot be contaminated, strict sterile techniques must be used during insertion and maintenance.

    On top of Kabiven TPN, the doctor has also given Baby C albumin (for extra protein) drips, also through the central venous catheter.  The albumin drips are dispensed from a huge syringe attached to  the machine above her head. I was shocked when I found out how much the albumin cost.

  • 17May

    This is Baby C on the day before her discharge from the hospital. Putting her on the sofa-bed for her to practise walking can really cheer her up and put a big smile on her face.

  • 09May

    Today is the 5th day that my poor baby has not eaten any solid or semi-solid food. Some of the things that have been going into her tummy via her mouth are Vitamin C syrup, paracetamol syrup, anti bladder spasm meds, some breast milk, Cactus juice and water. That’s about it and my poor baby is still very weak from hunger, all the vomiting, pain and discomfort. She has been on Vamin Glucose drips (a nutrients and vitamins solution) along with the regular saline drips.

  • 08May

    When Baby C puked non-stop, well, like every half-hourly, though in small amounts, our doctor inserted a nasal gastric tube through her nostrils. The tube goes into her tummy. Our doctor then aspirated the gas out from her tummy through the tube. Each time she felt like puking, the nurse would aspirate out the gas and dunno what liquid from her tummy. Sometimes, meds and milk that she had just eaten would be aspirated out too. Tube feeding can be done through the nasal gastric tube too.

    The liquid aspirated out from Baby C’s tummy.

    When Baby C’s bouts of vomiting got too frequent, the doctor ordered the nurses to aspirate the gas out from her tummy every 2-hourly.  This bottle is now hanging outside Baby C’s nose all the time.  I hope she will stop puking tomorrow so that the tube and bottle can be removed too.

  • 08May

    This is how my poor baby looked like yesterday… with tubes everywhere on her body – 4 tubes coming out from her tummy, one on her hand for the IV and one nasal gastric tube on her nose that gets connected to a bottle. My little trooper kept moving about and the bunch of tubes got entangled all the time. My maid and I now spend our days detangling the tubes and to stop her from pulling them.

    Cleaning her bum after her poo poo is also tricky as the tubes will inevitably touch the poop. I can’t wait for the tubes and stents to be removed from my sweetie-pie’s body.

  • 02May

    We were informed by our pediatric surgeon that he needs to perform a procedure called cystoscopy on Baby C on the day of the surgery.   That procedure is required in order for the surgeon to properly diagnose where the problem is before he performs the ureter reimplantation surgery. 

    I did a google search on cystoscopy and this is what I found :

    Cystoscopy is performed with a cystoscope, a specialized endoscope (a tube with a small camera on the end). There are 2 types of cystoscopes; the standard, rigid cystoscope and the flexible cystoscope.

    The procedure usually takes between 5 and 20 minutes. The urethra is cleansed, and a local anesthetic is applied. The scope is then inserted through the urethra into the bladder.

    Water or saline is injected through the cystoscope to fill the bladder. As this occurs, you will be asked to describe the feeling. Your answer will reveal information about your condition.

    You may feel slight discomfort when the cystoscope is passed through the urethra into the bladder. You will feel an uncomfortable, strong need to urinate when your bladder is full.

    You may feel a quick pinch if a biopsy is taken. After the cystoscope is removed, the urethra may be sore, and you may feel a burning sensation during urination for a day or two.

    Images taken from www.patient.co.uk/showdoc/27000310/

    Baby C will not feel anything as she will be under GA.  I really hope and pray that when she wakes up and for the next few days that follow, she will not feel pain when she pees and will have no bladder spasms.  I can imagine how painful it is to have a burning sensation in the urethra, not to mention pain on the wound on her tummy.  I’m having sleepless nights now and I just can’t stop worrying about how Baby C will react after the surgery. I can’t imagine the amount of pain Baby C will have to endure.   I’ve gone through 3 major surgeries and 1 minor surgery and I know how painful post-surgeries are.   I’m praying for miracles again… miracles that Baby C will have a 100% successful surgery and an almost pain-free post-surgery recovery.

  • 25Apr

    Our appointment with the new pediatric surgeon (who was referred to us by a pediatric surgeon in London) went well. This surgeon seemed very thorough, patient, confident and assuring. After a lengthy discussion, we were given a date for Baby C’s surgery. We will have to check into the hospital on the 4th of May, where an IV line will be set up on Baby C’s hand that night. The surgery will be carried out early the next morning and Baby C most likely have to be hospitalized for 4-5 nights.

    Baby C was also prescribed a new antibiotics (Trimetoprim) after being off antibiotics for a week (when the E.Coli bacteria became resistant to all 9 of the antibiotics tested in the sensitivity test). I am praying that Baby C will not get another UTI from now until the day of the surgery coz if she does, the operation date has to be postponed again.

    In the meantime, I hope to be able to feed Baby C more food so that she can gain a little weight. The surgeon said that Baby C is a little underweight. The surgery will have a higher chance of success if the child is bigger. This has to do with the size of the bladder and ureter or something to that effect. I don’t really know how to explain it but the doctor did mention about the size and weight of a child and their relation with the success rate of the ureter reimplantation surgery. Feeding Baby C and making her interested in food is a challenge for me now. My sweetiepie seems to get bored with a single type of food pretty fast and I have to keep changing menus and giving her new food to whet her appetite.

    We were told by the surgeon that the success rate of the ureter reimplantation surgery is 97% – 99%.

    Petite Baby C on the king-size bed in Northam Hotel in Penang. She cried and screamed throughout the 1-hour flight from Subang to Penang. When we finally reached the hotel, she was all smiles again 🙂

  • 21Apr

    We will be taking a flight to Penang this Thursday to meet with the pediatric surgeon / pediatric urologist who was recommended to us by a pediatric surgeon in London.  Our appointment with the pediatric surgeon, Dr N will be on Friday, at a private hospital in Penang. 

    This will be Baby C’s first time on board an aeroplane and I hope she’ll behave well on the plane.   Anyway, it’s only a 1-hour flight.    I hope everything will go smoothly in Penang this week and that the surgery can take place next week.  This is one big hurdle for my sweetiepie and me this year and I hope that everything will be over and done with and behind us soon.

    Over the telephone, this doctor sounded pretty confident that Baby C’s problem can be fixed with a clear-cut surgery, i.e. a ureter reimplantation.  We’ll see what he says when he sees the MAG 3 scan report and films.  I hope what the surgeon had told me is true and that Baby C’s problem can easily be fixed with the ureter reimplantation surgery.

    This 2-day trip to Penang will cost us over RM1k… and hubby is about to break his wallet soon with the impending surgery…. and more trips to Penang. Haiz….


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About Me

I am a WFHM with 3 beautiful girls - Alycia, Sherilyn and Cassandra. I quit the job that I love to stay home with my 3 angels as that's what I've always wanted to do. I am a health freak, fitness freak and a clean freak too. I love to eat and live healthily and I want my kids and hubby to do the same too. Apart from being obsessed with good health, I am obsessed with fashion! I own an online store that sells ladies and kids clothing. Check out my online store at Old & New Stuff For Sale

I always believe that your health is your wealth and if you have good health, that's the best gift you can ever ask for from God.

Do check out my other blogs Health Freak Mommy and Health Freak Mommy’s Journal too!

I have been writing product reviews, food reviews / restaurant reviews and product advertorials since 2007. Please email Shireen at shireenyong@gmail.com to inquire if you are interested to place an advertorial or review in this blog.

Thank you!