Today is the day that Baby C did the IVP and MCUG procedures at the hospital. We spent almost the whole day at the hospital and it was a day of non-stop yelling, wailing and bawling for poor baby. After feeding her the sedation meds the moment we reached the hospital, I nursed her and spent almost 30 minutes to put her to sleep. I just had a nagging feeling that she would be wide awake throughout all the procedures and true enough, the moment she was placed on the hospital bed, my baby who has developed a phobia of hospital beds woke up! Before anything was done to her, she was already yelling her heart out. Can you imagine the hours that passed from 10am – 3pm? It was a nightmare for both baby and me…. and truly torturous for baby.
As I had expected, our doctor had a difficult time finding a vein to insert the IV line. Poor baby was poked a total of 3 times. After all the crying, baby dozed off in my arms and I brought her down to the Imaging Department for the big thing. I was ordered out of the Imaging Room. The doctor first inserted the catheter into her urethra. The MCUG procedure followed. Poor baby’s screams and cries really crushed my heart to pieces. I wanted to cry out loud but tried hard not to…. there was a HUGE lump in my throat throughout my time at the hospital today. After half an hour which seemed like forever, the door of the Imaging Room opened and I saw one of the nurses cradling her. Poor baby’s eyes were swollen from all the crying.
As the doctor could not find a vein on her hands, the IV line had to be affixed on her foot. She was poked once on her hand and twice on her feet.
Baby all groggy from the sedation meds…. waiting for the Radiologist to arrive to perform the MCUG on her.
After the MCUG, I had to make baby wee wee to empty her bladder before the last picture is taken on her empty bladder.
Waiting for baby to pee was the hardest and took up a lot of time. We had to make her pee several times until the bladder was empty before a picture could be taken.
In this pic, I was waiting for baby to pee. She wasn’t wearing any diaper and there was a waterproof paper beneath her bum.
The IVP procedure was less traumatic for baby as I could carry her when the dye (iodin) was injected through the IV line. What traumatized her (though not painful) was placing her on the metal bed with a huge X-ray equipment above her. Baby had to be placed on the bed several times, in different positions for pictures to be taken. Each time she was placed on the bed, she bawled and struggled. Though she was darn tired, sleepy and groggy, she was still crying big time the moment she was placed on the bed.
Long story cut short, we did not manage to see our pediatric nephrologist today as it was already 3ish pm by the time the 2 reports for the IVP and MCUG were ready. I only ate my lunch at 3pm outside the Imaging Room… which hubby packed for me from a nearby Japanese restaurant….and poor baby had to starve and only ate her lunch (porridge) at 5pm. I was merely swallowing down my grilled Mackeral fish and didn’t have any appetite. I was suffering from a tummy ache, resulting from STRESS!
We will be going to the hospital again tomorrow to meet our doctor for her to interpret the report to us. But one thing is confirmed. Both of baby’s right ureters (she has a Duplex or Duplicated collecting system, which means double ureters), are blocked…. thus, she will most likely need a surgery to fix the problem.
Everything seemed to go wrong today…
1) baby woke up unusually early today at 6:30am (her normal wake up time is 8:30am) and I couldn’t do much work in the morning but nurse her and entertain her. Consequently, we arrived slightly late at the hospital,
2) baby had to be poked thrice for the IV line (brandula) to be inserted as the doctor could not locate a vein,
3) the sedation meds didn’t work – though she had taken sedation meds and she was sleepy, her mind was wide awake and she cried and screamed the whole day,
4) blood was oozing out from the IV line on her foot and the line had to be taken out prematurely. Consequently, the antibiotics jab (to prevent infection resulting from the procedures) couldn’t be given through the IV line and had to be given via intra-muscular on her bum and caused baby more pain and trauma.
Damn the Murphy’s Law!
The damage to the hubs’ pocket today is over RM1k and all medical expenses related to baby’s kidney reflux will not be covered by her insurance.
….. to be continued.
i also wanna cry when i read your post. wish there is something we could do to lessen her pain. i thought all sedation meds work immediately and the patient would be unconscious right away? no? i am surprised that baby C woke up so soon. poor poor baby. i hope she has forgotten about her traumatic experience at the hospital today.
poor baby C. I can feel your pain and frustration. Hang in there.
Reading your post, I can almost cry and feel the pain. Hang in there and god bless, hope things will turn out for the better soon…
My heart goes out to baby C. I can understand how you feel when you hear baby cry, looking at the 2nd photo, I feel so sad. Be brave and hang in there. Hope this ordeal will be over soon.
*sigh*. It’s always sooo painful to read about what Baby C has to go through in the hospital. And I’m sad to read that she probably needs surgery.
I can only imagine that all this is difficult for you.But I think that you’ve been very strong so far. Do continue to be strong for baby C.
it is so painful for the baby and even more the you who can understand what is going on. Be strong, Shireen. Hope things will get better soon. *hugz hugz to you*
I believe behind every hard times, there are blessings in disguise. For sure that’s why u & baby c are so strong & tough in enduring all these heartaching trauma. Hope more sunshine will come to u & baby C n things wrk out well for both of u. Take care supermom!
Feel so sad that baby C need to go through all these painful procedures, poke again and again…hope the last resort – the surgery, will be good for both of u…
You have been so strong all these while, do hang in there, things will get better very soon…you got to be as strong as baby C…
I cannot imagine what a traumatic time it was for both Baby C and you and the rest of the family. Will keep everyone in my prayers for strength!
i hope this will end very soon for baby c..
she is surely a tough cookie..
hang in there *hugs*
take care
After reading your post… I don’t know what to say….
*Hugs* You are always in my prayer.
not covered by insurance? why? gosh.. breaks my heart to read ur post.. be strong baby c.. n to u too.. stay strong.. we are here with you..
I’m glad that despite going thru this terrible ordeal..there is an answer for Baby C. I sincerely hope that this is the be all and end all to her predicament.
I will pray to God to alleviate her suffering, keep her safe, and to give you strength during this very painful period. take care k..
Both you and Baby C are very strong. In my mind, “whatever that doesnt kill me, will only make me stronger”. Keep that in mind ok!
Thanks everyone for all the encouragement, prayers and kind words.
hi shireen, so sorry to hear this …..i know i can only symphatise what yr baby had to go through….and any mumy could feel the sharp pain in yr heart…..am giving u a big hug & pad on the shoulder!!!
i really wana hug yr baby now……poor girl !!!
hopefully this surgery will go smooth & fix the problem once n for all, good luck!!
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