2.5 years have passed since Baby was operated on her urinary tract and again cut up to fix her small gut 2 weeks after the 1st op, as a result of complication from the 1st surgery. The post op MCUG scan and post op MAG 3 scan have both shown that Baby has no more kidney reflux. Her right kidney (the one that had 3rd grade kidney reflux and a duplex system) is also growing well. Thank God we did not listen to the first surgeon and have 20% of her upper right kidney removed. All is well with my Baby now. But she is still leaking urine. She needs to wear a pad or diaper all the time. While she knows how to tell me that she wants to pee when her bladder is really full, she cannot control the urine from dribbling out. The surgeon told us that she has a ‘lazy bladder’ now due to the operation. He asked me if I would like Baby to be given meds to relax the bladder but I prefer to wait and see. Our surgeon assured us that the urine leakage problem will grossly improve when Baby is 6YO… which means that there are 2.5 more years to go!! Oh, I cannot wait for the day that Cass is forever off diapers, once and for all.
On my part, I can help Baby by bringing her to the toilet to pee every hour instead of allowing the urine to leak out when the bladder is too full. By bringing her to pee consciously, this will train her bladder to ‘work’. I guess I have to set my mind and be mentally and physically ready for all the hard work – by bringing Baby to pee every hour and have a battle with her each time. This girl is often too engrossed with whatever that she is doing that she will refrain and resist from going to the toilet to pee. I really have to have a serious pep talk with Baby to condition her mind to go to the loo to pee every hour that she is awake.
Cassandra’s 5th post Ureteral Reimplantation surgery ultrasound scan.
I am sure her bladder control will improve. The surgeon held off on the surgery for my dtr till she was 6, maybe because by this age she was fully continent. However, she was on oral antibiotics for 5 long years! Also, over here the emphasis on toilet-training is much less…most kids don’t get trained till past 3 years. My mother when she came to visit wanted to train my kids at age 1!! I quickly put an end to it…too stressful for me to see her getting stressed out!
Chris, OMG 5 long yrs on antibiotics! But I guess for your girl’s case it wasnt as bad as Cassandra’s as Cass also has a duplex system which caused her monthly UTI attack.
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